Jordan, 16 years old
Type of Cancer: Ewings Sarcoma
Cancer Treatment Received: Chemotherapy
Relationship Status at Diagnosis: Single
Current Relationship Status: Single
Age: 16 years old
Were you a parent at time of diagnosis? No.
Fertility preservation and fertility support services are important to me because: I have learned many things throughout my life and cannot be grateful enough for what I have. I’ve always had the thought of becoming a parent one day, having my own family and experience what it would be like. Becoming a parent is a huge commitment in which I feel I am up to that challenge. I am grateful for this opportunity and having the chance to keep hope living normally after cancer.
At time of diagnosis, did you know that cancer treatment could affect your fertility? I was honestly shocked when I heard the news. I was only 16 years old and never really thought of having kids at such a young age. My Social worker had told me about this program and knew instantly that it was something I would be interested in. At first, I was upset thinking that there wasn’t any hope but talking to friends and family made me feel better. They made me realize that adoption could be an option as well.
Do you feel you received adequate information and/or support regarding fertility risks associated with cancer treatment and fertility preservation upon your diagnosis? Why or why not?: I feel my team did an amazing job telling me about this program. When my doctor told me some of the long term risks that could occur, it was one of the first thing my Social worker had introduced me to. I feel that the information was clear but not explained into details when my social worker had told me about it, because of needing to start treatment right away. But the support and drive to me doing it was certainly here.
At time of diagnosis, did you know that cancer treatment could affect your fertility?: I was honestly shocked when I heard the news. I was only 16 years old and never really thought of having kids at such a young age. My Social worker had told me about this program and knew instantly that it was something I would be interested in. At first, I was upset thinking that there wasn’t any hope but talking to friends and family made me feel better. They made me realize that adoption could be an option as well.
Do you feel you received adequate information and/or support regarding fertility risks associated with cancer treatment and fertility preservation upon your diagnosis? Why or why not?: I feel my team did an amazing job telling me about this program. When my doctor told me some of the long term risks that could occur, it was one of the first thing my Social worker had introduced me to. I feel that the information was clear but not explained into details when my social worker had told me about it, because of needing to start treatment right away. But the support and drive to me doing it was certainly here.
If you were not already aware, how did you feel after learning about the possibility of cancer-related infertility?: I was horribly upset. It was something that I never really thought of and how important it is to me. I would never had guessed and for it to happen at such a young age made me lose hope at first thinking that having a family of my own was impossible. It was devastating to know that if I had ever decided to have a family when I was older, I couldn’t, until I found this program.
Briefly describe your life prior to your diagnosis (work, education, family, location):: Going to school is a hassle for me now. Still in high school and was extremely looking forward to my 11th year courses. I barely go to school due to treatment or I may not be feeling well. My friends always wonder why I am missing school and when I get back to school, I have little to no motivation doing work but assignments pile up due to my absences. Although I have a tough time going to school, I receive lots of support from teachers, guidance counselors, family and close friends. As cancer affects me, it also affects my friends and family as well. WE are diagnosed with cancer, not just me.
Did your diagnosis change your life or alter your plans for the future?: It has changed my life immensely. I had many plans especially this year but had to step back from it. Doing chemo certainly feels like a long day despite things moving so quickly. I was lucky enough to have several treatments on breaks (Christmas/Spring break). I did not have any time for school, the things I enjoyed and also lacking motivation to do school work. Although many things are going on in my life at the moment, I still feel I am able to have a great future if I decide that I want it to be. Being diagnosed with Cancer only taught me to have more faith and be stronger because challenges are part of life. Learning to cope with these challenges is also part of life and even though they may have altered some of my plans for the future and my life in the present, I still feel confident that things can get back to normal after treatment.
How did your diagnosis impact your desires to become a parent in the future?: When I was told my diagnosis could impact my desire to become a parent, It made me want to experience a family even more. I wanted to prove my cancer wrong and I did not want this to affect my life long term. I love kids and think it is a great way to add a new person in your life that you will love and care for. I still have hope and believe that I will get better and someday have a family of my own.
If you did undergo fertility preservation, please briefly describe your experience.: It was honestly the easiest thing. Took little to no time at all. Early in the morning, went to the place, registered and waited for my name to be called. After being called, I did a consent form with my Mom and that was all. I was guided into a room in which I ejaculated my semen into a sterile cup to have it frozen.
Have you become a parent post cancer treatment?: No
What advice would you give newly diagnosed cancer patients who are facing the possibility of infertility?:Don’t give up. Stay positive/strong with hope physically and mentally. Having friends and family who understand and support you is what gave me hope. Take this seriously because this is not going to be a walk in the park. Give yourself hope and think that this is just one of the many challenges in your life that people will help you overcome. You are not alone.
If you would like to add any additional information please do so here: This is an amazing program that any cancer patients should consider. There is a highly amount of support by all staff members because I am truly grateful for what this program has given me in life. Me and my family thank you.
How did you hear about Fertile Future?: Mount Sinai fertility clinic recommended by my social worker.